Posted: 27/05/10 by The PSP Association
The PSP Association is looking for volunteers to take part in a half marathon around the iconic Silverstone motor racing circuit on Sunday 6 March 2011. Commonly used as a warm up for the London Marathon, the Silverstone Half Marathon is fast and flat, making it perfect for a half marathon novice.
Entry is now open and willing particpants are encouraged to sign up today at The Silverstone Half Marathon Site and run for PSP. Those that do sign up are asked to let the association know on 01327 322419 and the team at PSP will provide a training plan, running vest and fundraising pack to help them make the most out of the race.
- Affects over 10,000 people in the UK
- Is terminal; life expectancy is on average seven years
- Leaves those affected unable to walk, talk, eat or see
The PSP Association:
- Provides help and support for those living with PSP and CBD (Progressive Supranuclear Palsy and Cortico Basal Degeneration)
- Funds research into the cause, treatments and eventually a cure for PSP
- Relies on voluntary donations
PSP is a fatal neurodegenerative disease estimated to affect over 10,000 people in the UK at any one time. PSP has no gender or race boundaries, although it is unusual for diagnosis below 40. Those affected by PSP will be robbed of the basic every day functions that most of us take for granted. Over time, the disease will affect sight, movement and mobility, speech and the swallowing reflex. In most cases the mind remains unaffected, trapped in a body that will no longer function. Life expectancy from onset of symptoms to death varies from person to person but is an average of seven years.
Despite this, much can be done to improve the quality of life of those living with PSP, and to support their families and carers during this difficult time.
The PSP Association provides a range of services to ensure people living with PSP have access to the information, care and support that is vital to quality of life. It works with medical, health and social care professionals raising awareness of PSP and providing education, training and advice on a diverse range of subjects, from better diagnosis to managing the disease from onset to death. We also work to influence decision makers at national and local levels to raise awareness and improve services.
For more information on The PSP Association, visit www.pspeur.org or call 01327 322419