Posted: 18/06/10 by The PSP Association
A Royal Windsor Race Night was held last week in aid of The PSP Association, with guests attending for an afternoon on of racing followed by dinner with Lord Coe and a Grand Charity Auction to raise funds for the charity.
PSP (Progressive Supranuclear Palsy) is a fatal neurodegenerative disease that, over time, robs those affected of the ability to walk, talk, eat or see, yet in most cases the mind remains unaffected and trapped in a body that will no longer function.
Chairman of the London Organising Committee for the 2012 Olympic Games, Lord Coe, became involved with The PSP Association following his mother’s diagnosis with the disease, and has continued to support high profile events for the charity. The Royal Windsor Race Night is one of many fundraising events held throughout the year in aid of The PSP Association, and proceeds from such events go towards ensuring that the charity can continue to provide key services to those living with PSP.
One of these services is the 24 hour Specialist Nurse Helpline, whereby families, carers and those living with PSP can speak directly to a PSP Nurse for information, support or guidance on how to deal with their condition. The PSP Association also works with medical, health and social care professionals raising awareness of PSP and providing education, training and advice on a diverse range of subjects, from better diagnosis to managing the disease from onset to death. The charity also works to influence decision makers at local and national levels to raise awareness and improve services.
Sebastian Coe said: “The support which The PSP Association offers to those affected by this disease is invaluable, and with such little awareness of PSP amongst health professionals and amongst the general public, events such as the Royal Windsor Race Night not only serve to raise funds but also play a huge part in publicising this condition and the effect it has on a family.
With many auction items for the evening donated by generous supporters, prizes at the Royal Windsor Race Night included a South African Safari for Eight People, Four Tickets to the London Premiere of ‘Toy Story Three’, and a Private Tour of the 2012 Olympic Stadium followed by lunch with Lord Coe.